The next few weeks and months after Tommy’s diagnosis brought so much uncertainty. At the time of Tommy’s diagnosis he was only the 26th known child in the state of New York with Krabbe’s disease. Every time it seemed like there was hope something came along to take it away, whether it was more blood work or an emergency MRI.
After months of back and forth they were referred to the leading doctor in research and care for children with Krabbe. The only downside was that she was located at the Children’s Hospital of Pittsburgh, a 7-hour drive from the Reznick’s family home in West Islip, New York.
Tom Reznick delivers a heartfelt speech at our Annual SkyHope Gala
When the family was told they needed to travel to Pittsburgh they knew they were going to make it work no matter what. The first time they went to Pittsburgh they flew on a commercial flight. For anyone in their position it’s difficult to go to the airport with a 2-month old and figure out how to get from the airport to the hotel, from the hotel to the hospital.
After that first trip and creating their game plan for how to treat their son, they figured they needed to travel every 3 months for the first year, every 6 months for the second year, then reevaluate. After explaining their situation to their family, one member mentioned PALS SkyHope and they looked into it immediately.
In closing, with everything parents go through, the stress and worry for their children. They don’t know what tomorrow brings, but knowing that a resource like PALS SkyHope is out there can reassure parents that they have one less thing to worry about. With the help of donors like you Tommy has reached his third birthday.
Please donate today, become a part of our growing community and help life saving missions like this continue.
PALS began its mission to provide free medical, compassion and veteran flights back in 2010. It was the dream of our founders, who as pilots felt their skills and resources could help people with free air transportation for medical treatments.
That initial inspiration and the first PALS flight has now grown to over 30,000 flights for over 3,200 families and an astounding 6.5 million miles flown. Quite an accomplishment for a free air travel organization a little over 10 years old.
Over the years and over many missions, we’re honored and humbled to hear how many lives we’ve been able to impact. Often times when a person is diagnosed with a life-changing illness, the care they need is inaccessible by car due to the repeat trips and length of each trip. When these families and individuals reach out to PALS, our team of volunteer pilots and mission coordinators go to work to make free travel to a medical facility or hospital possible. The stories we hear and those that our patients send us are all the reward we need.