Approximately 30 million people within the United States suffer from rare diseases.
Patients with rare diseases often must travel great distances to reach doctors, hospitals, infusion centers, centers of excellence, treatment centers, and clinical trials throughout the U.S.
- PALS SkyHope also supports travel to rare disease events and conferences, where patients and families can gain essential information.
- PALS SkyHope collaborates with the National Organization for Rare Disorders (NORD) and numerous other rare disease organizations and advocates throughout the country to serve families in need
PALS SkyHope has provided over 10,000 flights nationally for rare disease patients, caregivers, and families.
Supporting the PALS SkyHope Rare Diseases Fund helps patients like
Quinlee
Quinlee was born with a rare disease that left so much uncertainty for her future. Doctors didn’t know if she would be able to walk or talk. When she was 2 months old, Quinlee began regular specialized treatments, but they were an 11-hour car ride away. That’s when her mom learned about PALS SkyHope. With her regular trips shortened to a quick plane ride away, Quinlee
has gone way beyond what most people thought she would.
