NORD Annual Patient & Family Forum in Houston, TX – June 2019

Hilton Americas - Houston

JUNE 19, 2019


Patient Airlift Services Flies 14 Patients and Family Members to The National Organization For Rare Diseases, Annual Patient & Family Forum Weekend in Houston, Texas.

Beginning Friday, June 21, 2019 through Sunday, June 23, 2019, Patient Airlift Services (PALS) will be providing free air transportation to 14 people from around the United States, enabling them to access compassionate support at the National Organization of Rare Diseases (NORD) Patient & Family Forum in Houston, Texas.

PALS believes that when someone is experiencing an illness or humanitarian crisis that everyone should receive the best medical care, compassionate support or disaster relief, no matter how far that care, or support, is from home. PALS team of volunteer pilots, as well as corporate and commercial partners, enable them to provide families with comprehensive door-to-door transportation assistance, including both free air and ground transportation. Since inception in 2010, they have served over 2,900 families, with over 19,000 free flights and 3,500 ground trips.

NORD estimates that 25-30 million Americans live with a rare disease, and 50% of this population is under the age of 18. The Forum will contain key insights from medical professionals, and provide an environment where patients and their supporting family members are learning from others shared experiences.

Thanks to three PALS Volunteer Pilots, members of the NORD community from Illinois, Mississippi, Georgia, Louisiana, Indiana, and Texas will have access to the Forum that they may not have otherwise had due to transportation and financial barriers. PALS Pilots, Joe Howley, Paul Weismann, and Rich Bocock, are creating the opportunity for families to experience the Forum and collectively saving them over 5,000 miles of driving!

PALS recognizes and commends the honorable work that NORD is doing and is looking forward to an ongoing partnership. Working alongside organizations like NORD, PALS continues to partner families in need of critical air transportation with the charitable aviation community.

For more information on NORD, the Forum, and their services go to www.rarediseases.org.

For more information on PALS or if you or someone you know needs critical air transportation, please contact PALS at www.PALServices.org or 631-694-7257. Click here to watch PALS in action.

PALS in Texas Media Packet can be found here: www.PALSFlight.org/TexasMediaPacket

CONTACT: Melissa Guida
Patient Airlift Services (PALS)